Phil - your stoicism amazes and humbles me. Makes my recent repeat surgery for Dupuytrens seem really trivial. And it is such a refreshing contrast to another site I've been visiting. I've got a rare (20/100000) blood condition, which in my case is controlled with no problems. But for interest I started looking at a Facebook site devoted to such conditions and, while I'm obviously lucky in having almost nil associated problems it has really made me wonder what harm such sites may be doing. Almost every post is a long whine about how dreadful everything is. The last straw for me came when the site moderator, one of the worst complainers, actually wanted to compile a list of all the things that folk with these condition miss compared to normal folk. Fair enough, I guess, among friends, but she wanted to do this to prove to the wider world how bad it was, and got really annoyed when I suggested that compiling some positives might be more valuable. What it must do to someone newly diagnosed who goes to that site wanting to learn ,I dread to think.
It would do most of the members of that forum immense good to read your posts. Long may you keep smiling, even if it is really a grimace some of the time.